Your data

You decide how far this goes.

We hold ourselves to a simple standard: collect only what’s needed, keep it under your control, separate it from who you are before it’s used for research, and never act on your behalf without your explicit permission.

Your BT22 Profile

Your profile is yours.

Your records are personal, and a profile built from them has to be too. The BT22 Profile is being built so that:

Your case is identified by a unique BT22 Case Number rather than your name wherever practical.
You can see what you’ve uploaded and the status of your case.
You choose who, if anyone, can see your profile — an attorney, a benefits VSO, a case worker, a caregiver, or family — and you can change that later.
You can communicate with the people you add to your profile within the portal.
You can dispute information we extracted or report a potential factual error.

A future option, Responder Access, would let you choose to share specific information with law enforcement and other responders for use in a crisis. Like everything else, it would be your choice, and you could change it at any time.

Confirmed at launch

The portal opens soon. We’ll publish the exact sharing and access controls here when it does, so what we describe matches what’s actually available.

What we do with your profile

Reviewed across your whole story. Information sent to you.

Review and alertsPlanned

The BT22 Profile is analyzed across your whole story, so we can support the individual pieces of it — for example, a connection between something in your records and something in your benefits.

If we see issues on our end, we can flag them internally and send you or your family information on what to be aware of. That includes if we know you’re working with someone who isn’t accredited, or isn’t legally allowed to do what they’re doing.

What we send goes to you or your family. We don’t contact anyone else on your behalf without separate, explicit permission.

Confirmed at launch

Before this opens, we’ll publish what we review, how flags are handled, and who at Behind The 22 can see what’s in a profile, so what we describe matches what’s actually happening. What this looks like for you.

Medication Safety & BT22 Live

Medication check-ins and BT22 Live: your choice, and revocable.

Medication Safety and BT22 LivePlanned

Medication check-in answers are health information. When Medication Safety and BT22 Live open, they’re being built so that:

Nothing is shared with anyone by default.
You choose each person in your circle, what each of them is told, and what triggers a notification.
In certain situations you can choose to share your risk level with local first responders. That’s a separate choice from sharing with your circle, and from sharing your profile.
You can revoke any of it at any time, for one person or for everyone.
Before you share, you can preview what each person would see.

Confirmed at launch

Before anyone is asked to use these tools, we’ll publish how check-in answers are stored, who at Behind The 22 can see them, how long they’re kept, and whether any de-identified version is used in research.

Legacy Access

After your death: only if you set it up.

Legacy AccessPlanned

Legacy Access is being built so that:

Nothing opens while you’re alive.
You choose who can access your profile after your death, and what each person sees.
Your wishes are recorded in your own words.
Contributing your profile to research after your death is a separate choice, off unless you turn it on. If you do, it’s de-identified first.
You can change or remove any of it at any time while you’re living.

Confirmed at launch

Before anyone is asked to use it, we’ll publish how a death is confirmed and access opens, who at Behind The 22 can see what, how long information is kept, and what happens if no one is named.

Screeners

Our free screeners ask what happened — not who you are.

Our screeners are built to be low personal information, and no email is required to complete one. They ask about what happened medically and operationally.

Our screeners do not ask for any of the following:

Full legal name
Home address
Military unit information
Social Security number
VA claim number
Medical record number

Please don’t send us these by email

Do not send Social Security numbers, VA claim numbers, DoD ID numbers, full dates of birth, home addresses, medical-record numbers, photographs of identification, passwords, banking information, or complete medical records by email or through any open form.

How information gets used for research

De-identified before it ever becomes research.

Before anything is used for pattern analysis, identifying details are removed or separated from the substance of what was shared. A research entry looks like a case description — an injury history, a documentation gap, a timeline — not a name attached to a story.

Case information is handled under a written consent protocol and is used, in de-identified and aggregated form, to identify recurring patterns. It never authorizes us to contact any agency, provider, or third party on your behalf without separate, explicit permission.

What oversight bodies would see through the planned Oversight Portal is de-identified, aggregated information only — never an individual’s records.

How far you go is up to you

Every step is optional.

You never have to go further

Filling out a screener helps you see the pattern in your own history, and helps us see the pattern across many people’s histories. If it seems relevant to something we’re studying further, we may ask whether you’d like to share more. That invitation is always optional, always your choice.

Extra distance, if you want it

You’re welcome to create a new, free email address that doesn’t include your real name or any other identifying information, and use it to communicate with us. It’s entirely your choice, never required. Whatever email you use is only for communicating with you about your own submission.

Questions about your information? Ask before you share anything — we’re glad to explain.